Dados do Trabalho

Título

PRECISION MEDICINE - INFORMATION AND TECHNOLOGY TO EDUCATE HEALTH PROFESSIONALS AND PATIENTS

Introdução

Precision Medicine combines the data already used for diagnosis and treatment (signs, symptoms, personal and family history, as well as tests) with the person's genetic profile, currently being applied to oncology. Despite being widely discussed in the oncological context, it benefits few patients and its information is poorly accessible.

Objetivo

In order to humanize health based on education, raise awareness and demystify the approach, as also to clarify and facilitate access to information on this new technology, an online mini-course was created to address this topic.

Método

Beaba Institute, a non-profit entity for demystifying cancer and providing information about the disease and treatment, has developed the first Instagram mini-course in the health area with the theme of Precision Medicine, divided into 5 chapters:

• Precision Medicine
• Precision Oncology
• Genetics
• Medicines
• Glossary

Through co-creation, interdisciplinarity and Information Technology, the development was made with multi-professionals: oncologists working in genetics, psychologists, illustrators, art directors and technology developers.

www.instagram.com/beabadamedicinadeprecisao/

Resultado

In the first 30 days, between February and March 2021, 561 users were reached with 1,097 visits and 387 followers with organic engagement. The profile of users according to the age group: 38% are between 25 and 34 years old, 31% are between 35 and 44 years old, 15% are between 18 and 24 years old and 16% are over 45 years old. According to gender, 89% of users are female.

Conclusão

The mini-course is an empowerment tool for patients and family members to make the decision shared with their health team, as well as it can be a way to clarify the possibilities of treatment in a given case. The success in developing this course would not have been possible without interdisciplinarity, adding technical information and graphic design as an effective tool for engaging and supporting outcomes related to heath.

Palavras-chave

Precision Medicine, Genetics, Information, Education, Interdisciplinarity, Co-creation

Área

Oncologia - Políticas Públicas, Acesso, Farmacoeconomia e Gestão em Saúde